He was born with facial tumours due to a mutation in his genes and since then has to deal with other children staring because they don’t understand his condition. A BRAVE child with a disfigured face refused surgery because it could have cost him his smile. Ethan D’Amato suffers from Neurofibromatosis type one – or NF-1 – meaning he was born with severe facial tumours. The courageous 11-year-old has been offered surgery to remove his tumours but was told that could potentially damage his nerves – meaning he could have lost the ability to laugh and smile. Ethan, who lives in Dallas, Texas, turned down the offer and decided a life with tumours is better than a life without smiling.